So I'm starting to doubt that I have a sleep disorder. Basically I don't feel any better on the meds i'm on for the hypersomnia, and they don't seem to be having any effect at all. If anything i've noticed myself getting worse these last few months and certainly these last few weeks.
I'm on a low dose of the Provigil, but I think I should notice it doing something. The Ritalin and the Vyvanse made me jittery, but I wasn't much more awake, alert or energetic on them.
Here lately I've been getting up, taking the Provigil and needing a nap about two hours later. Yesterday I took my morning dose and my afternoon dose then went home and slept two and half hours. Clearly it's not working.
Furthering my doubt along is that I don't always feel sleepy. I want to lay down, I want to close my eyes and I can surely sleep. But I don't always feel sleepy. I often feel worn out, wrung out, generally crappy. Like i'm still getting over a flu. Like I still have Mono (that was ten years ago BTW). Like my blood is made of lead. Something is wrong here and I don't think it's that my brain is confused about whether it's day or night.
Now let me be clear about this: I am not upset with my doctors for possibly diagnosing me with the wrong thing. As far as doctors go I have rolled 20s each time. I think they have put forth a yoeman effort in trying to figure out what the hell is going on here. But fatigue is the king of non specific symptoms and it's baffled and eluded some of the best doctors in the world.
So i'm back on the treadmill of doctors appointments for the time being. At the very least it'll give me something to write about in next year's Christmas letter.